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Citizens United for Research in Epilepsy (CURE), is the leading nongovernmental agency fully committed to funding research in epilepsy. CURE’s mission is to find a cure for epilepsy, by promoting and funding patient-focused research.
Citizens United for Research in Epilepsy (CURE), the leading nongovernmental agency committed to finding a cure for epilepsy through the funding of long-range, cutting edge research, seeks nominations and applications for its next Chief Executive Officer. Poised to build upon a 20-year legacy of dedicated research funding and strong and continuing partnerships, CURE seeks a CEO who will elevate its reach nationally and internationally to ensure research toward a cure remains an international priority and the advancement of that research transforms and saves millions of lives.
CURE has raised more than $60 million toward epilepsy research since its inception in 1998, placing the organization on the front lines of new knowledge in the treatment of epilepsy. Translating its fundraising into action, CURE has awarded over 220 cutting-edge projects in 15 countries around the world and consistently commits more than 88% of its expenditures directly to its mission, a track record that results in gold-star ratings in nonprofit evaluative tools like Charity Navigator. This smart and effective investment in science has consistently brought new attention and talent to the field. The epilepsy research community is strong and poised to make true strides towards eliminating seizures and their consequences, but more is needed. One in 26 people will develop epilepsy in their lifetime and the greatest burden of impact is on children. Yet, while epilepsy affects more people than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s combined, it receives fewer federal dollars per patient than each of these. Through collaborative evaluation and expansion of CURE’s Signature Programs, strategic identification and implementation of new mission-consistent initiatives, alignment of field resources and programs, and elevation of CURE’s brand to increase its community of supporters and strategic partnerships, the next CEO at CURE is positioned to advance work that will affect millions of lives for the better.
The new CEO will be a compassionate leader who is deeply committed to working with families affected by epilepsy, who understands their stories and lived experiences and has the ability to reflect this in CURE’s fundraising and strategic priorities. With an intuitive understanding of the nuances that exist within this community, s/he will promote a vision for the sector that elevates the profile of the disease and critical research associated with it. The CEO will work collaboratively with the board, staff, and community stakeholders to develop and execute an organizational development and fundraising strategy for CURE and will flawlessly steward funding relationships. Joining a small and highly dedicated team committed to finding a cure for epilepsy, and in partnership with the Chief Scientific Officer, the CEO will leverage CURE’s leadership in innovative research and position to build strategic partnerships across a wide range of non-profit, governmental, advocacy and industry forums. Internally, s/he will have operational, financial and staff oversight, promoting a culture of collaboration and effectiveness and ensuring the team is continually moved by the work.
The successful candidate will be an inspiring, compassionate, strategic, and emotionally intelligent leader who is committed to the advancement of epilepsy research. S/he/they will have proven and successful experience fundraising combined with the ability to manage and mentor a results-oriented team that holds the work of the organization to the highest standards. S/he/they will be committed to the field of epilepsy as a whole, will inspire alignment of resources and relationships as the leading public representative of CURE, and will honor and engage communities personally affected by the disease in the ardent fight for its eradication.
This search is being conducted by NPAG. Application instructions can be found at the end of this document.
CURE was founded by a small group of parents of children with epilepsy who were frustrated by their inability to protect their children from seizures and the side effects of medications. Unwilling to sit back and wait, they joined forces to share stories and support and search for a cure. This early group was spearheaded by Susan Axelrod, who leveraged these families’ connections, resources, and experiences in the early years of CURE to create what has now become a 20-year legacy of funding research.
In 2000, CURE co-sponsored the National Institutes of Health Conference, Curing Epilepsy: Focus on the Future in March of 2000 —the first of its kind to focus on a cure for epilepsy. In addition, CURE was one of the key sponsors involved in shaping the direction and outcome of a newly commissioned report released in March 2012, The Public Health Dimensions of the Epilepsies. The organization was instrumental in the creation of the NIH Epilepsy Research Benchmarks, which were created to help guide the community toward a cure, and also invests in the pipeline of future epilepsy researchers through various mechanisms that support young investigators
CURE has led a dramatic shift in the epilepsy research community from simply treating seizures to enhancing understanding of underlying mechanisms and causes, so that cures and preventative strategies can be found. CURE’s research program is cutting-edge, dynamic and responsive to new scientific opportunities and directions through both investigator-initiated grants and innovative scientific programs and initiatives.
As the pioneer in Sudden Unexpected Death in Epilepsy research, CURE has awarded more than $4 million to over 40 investigators since 2004. In 2012, CURE launched the Infantile Spasms (IS) Research Initiative, a team science approach to this rare but devastating epilepsy syndrome, which is designed to accelerate discovery and advance a new, innovative therapy into the clinic. An investment of $4.5 million in teams of investigators at multiple institutions around the country has encouraged collaboration and multi- disciplinary approaches to advancing this critically important science
In May 2014, CURE launched a 3 year pilot program, the Epilepsy Genetics Initiative (EGI). With an initial $1.25 million in funding, EGI created a comprehensive, interactive database where patients can have their genetic data repeatedly analyzed in an effort to identify the cause of their epilepsy. This data will also be made available to epilepsy researchers in an effort to find new causes of epilepsy and use these findings to guide treatment. EGI brings patients, medical professionals, and researchers together in a mutually beneficial way to advance the genetics of epilepsy and help create a culture of personalized medicine for people with epilepsy.
In 2015, CURE secured a $10 million grant over five years from the Department of Defense, Psychological Health and Traumatic Brain Injury Research Program and launched a new research program dedicated to epilepsy research in veterans with traumatic brain injury. The Post-Traumatic Epilepsy Initiative is a team science multi-disciplinary program that will expand the knowledge around the types of injuries that predispose the brain to epilepsy, as well as develop new models to study epilepsy resulting from brain injury.
Today, with the leadership of Chief Scientific Officer Dr. Laura Lubbers, CURE’s internal science team, is committed to leading the organization’s efforts, identifying new opportunities and stewarding ongoing research investments. A Scientific Advisory Council comprised of five esteemed epilepsy specialists and more than 300 scientist volunteers, also lend their energy and expertise to CURE’s research program. A Lay Review Council made up of volunteers who have a special interest in understanding epilepsy research participates in CURE’s grant review process to ensure the stakeholder and patient point of view is always prioritized.
The last few years have brought a number of promising research trends. Collaboration has increased throughout the field and the community of epilepsy researchers is strong and growing. There have been meaningful strides in driving accountability and an increase in epilepsy-related research publications. Most importantly, recent scientific advances have provided renewed hope that a disease-modifying therapy or cure is within reach. Given these promising developments, CURE continues hold a place of prominence in the sector by building a more advanced organizational and research structure that engages a broad range of interested families nationally and invites them into the pursuit for a cure for epilepsy, undergirding its influence and impact in epilepsy research.
Opportunities and Challenges Facing the New POSITION
CURE’s commitment to funding research to find a cure for epilepsy by promoting and funding patient-focused research has been a hallmark over its twenty years of service. Recognizing the increasingly complex demands of the sector and the need to balance external demands with a strategic growth plan, focus on sustainability, and invest in internal capacity to support its research and programs, this CEO transition is an exciting opportunity for an entrepreneurial professional to lead an organization through a period of changing demographics, research and funding realities. The Board of Directors is deeply committed to a strategic assessment of the organization and outlining the opportunities that lay ahead. This position provides an exciting opportunity for the successful candidate to work collaboratively with CURE’s internal and external stakeholders, alongside the medical and scientific leadership in the field, to advance patient-focused research to find a cure of epilepsy.
The CEO’s responsibilities include:
Vision and Leadership
Working in close partnership with CURE’s Board of Directors, staff, and founding partners the CEO will develop and articulate a vision for an organizational and funding strategy that builds on CURE’s existing funder support and core research legacy. The new CEO will understand the field of epilepsy and work collaboratively with advocates and partners to raise awareness of the disease with the goal of enhancing funding and resources in pursuit of innovative research and a cure. The new CEO will advance a vision for CURE that expands the scope of its research funding and engages deeply with those affected by the disease. This includes creating a clear plan to elevate CURE’s role in the field of epilepsy and working in partnership with peer organizations to raise awareness and harness the power of governmental resources, the promise of research and academic partnerships, and the will and wishes of families affected by epilepsy nationally and internationally.
Develop and Support a Strong Team
The CEO will be a natural mentor and coach, building a culture in which team members feel valued, recognize pathways for growth, and are rewarded, retained, and developed as individual contributors. S/he will also review current internal organizational needs and opportunities to help build momentum and capacity for the future direction of CURE. This will include overseeing effective operational management and fiscal responsibility. The CEO will help develop an organizational design that ensures workload and workflow is maintained through the various cycles of external activities of CURE. S/he will help to articulate and implement CURE’s vision internally to motivate staff and develop an organizational culture that is supportive of the organization’s mission.
Develop a Strategy for Fundraising and Resource Development
The CEO will work with the Board to nurture existing relationships while cultivating new sources of revenue. S/he will work to strengthen and diversify strategic funding sources and grow revenue over the next five years. While CURE enjoys support from a core group of donors and advisors, the CEO will work with the director of development and the chief scientific officer to identify and expand this donor base. The CEO will work to expand CURE’s reach by generating new sources of revenue from individuals, corporations and foundations, by creatively exploring funding opportunities through collaboration with other organizations.
Community Relations & External Partnerships
The incoming CEO will be an effective steward and partner with others in the field of epilepsy to ensure that the field is aligned and supportive of advancement in research to find a cure for epilepsy. As chief spokesperson, the CEO will be expected to navigate and maintain mutually beneficial relationships that provide long term benefits for CURE. Specifically, s/he will develop opportunities to expand the organizations profile through broad and diverse engagement with professional associations, advocacy organizations, prospective partners, corporate and nonprofit partners, public officials, policymakers, the media and the public-at-large.
QUALIFICATIONS OF THE IDEAL CANDIDATE
While no one candidate will embody all the qualifications enumerated below, the ideal candidate will possess many of the following professional and personal abilities, attributes and experiences:
· Commitment to and respect for CURE’s mission and history. Familiarity with the disease and medical research context and demonstrated skills and development and fundraising is desired. A solid business mind paired with sound judgment and a commitment to CURE’s values, desired. A Bachelor’s degree is required; an advanced degree in a related field is preferred.
· A strategic and comprehensive approach to planning and decision making; the ability to lead an organization through periods of growth and change, requiring creative and innovative solutions to on-the-ground challenges. Ability to recognize and capitalize on growth opportunities while staying mission-aligned.
· A successful track record in identifying and securing private and public funding through diverse sources including government relationships and fundraising. A commitment to maintaining current funders and cultivating new donors, and a history of successfully taking organizations to the next level of sustained philanthropic support. Ability and enthusiasm to involve and solicit the Board and other community leaders in the solicitation process.
· An illustrated understanding of sound board governance, gained from direct experience working with professional boards or through active board involvement. Maturity and wisdom to engage and leverage a board’s diverse knowledge and expertise to hone the organization’s strategic direction.
· A management style that embodies respect, transparency, teamwork and accountability. Flexibility, humility and sense of humor; ability to share credit and spotlight others’ contributions.
· Exceptional written and verbal communication and interpersonal skills with a high emotional IQ. Ability to understand, translate and adapt content for multiple audiences.
· A leadership style that supports staff of different cultural and educational backgrounds.
· Gravitas, intelligence, compassion, and executive presence to represent CURE to a variety of constituencies.
· A commitment to the mission of improving patient outcomes through enhanced research, education and collaboration.
How To Apply
More information about the CURE may be found at: https://www.cureepilepsy.org/.
Due to the pace of this search, candidates are strongly encouraged to apply as soon as possible. Applications including a cover letter describing your interest and qualifications, your resume (in Word format), and where you learned of the position should be sent to: CURE-CEO@nonprofitprofessionals.com. In order to expedite the internal sorting and reviewing process, please type your name (Last, First) as the only contents in the subject line of your e-mail.
CURE is an equal opportunity employer and proudly values diversity.
Candidates of all backgrounds are encouraged to apply.
WHO WE ARE – Creating Thoughtful Effective Philanthropy
Rockefeller Philanthropy Advisors (RPA) is a nonprofit organization that currently advises on and manages more than $200 million in annual giving by individuals, families, corporations, and major foundations. Continuing the Rockefeller family’s legacy of thoughtful, effective philanthropy, RPA remains at the forefront of philanthropic growth and innovation, with a diverse team led by experienced grantmakers with significant depth of knowledge across the spectrum of issue areas. Founded in 2002, RPA has grown into one of the world’s largest philanthropic service organizations and, as a whole, has facilitated more than $3 billion in grantmaking to nearly 70 countries. RPA also serves as a fiscal sponsor for more than 50 projects, providing governance, management, and operational infrastructure to support their charitable purposes.
RPA is at the forefront of philanthropic growth and innovation, led by a diverse team of experienced, entrepreneurial, dedicated, and mission-driven staff with expertise across the spectrum of issue areas. More specifically, as a thought leader on Financial Inclusion or Impact Investing, RPA offers services in planning, strategy, evaluation, program management, and grantmaking, all designed to ensure that our clients’ philanthropic goals are met.
With offices in New York, Chicago, and San Francisco and London, RPA managers and advisors are dynamic thought leaders whose experience, networks, and perspectives help clients shape the future of their philanthropy.
WHO WE SEEK
The Vice President is a recognized leader in the field of philanthropy and expert in more than one issue area. The successful candidate will bring particular expertise in helping donors to advance impact investing, financial inclusion, and/or fintech strategies in ways that serve social, environmental, and financial objectives. The Vice President will have the capacity to be a generalist and lead varied projects, as well as to develop and implement major grantmaking programs and consulting engagements for donor clients of Rockefeller Philanthropy Advisors. The successful Vice President will also develop new donor relationships, actively engage in marketing, business development, and thought leadership activities. The Vice President will have substantive and positive experience in advising or consulting to major donors such as corporations, foundations, and/or families and individuals on their philanthropy. The Vice President, along with other RPA staff, will speak frequently to philanthropy audiences, news outlets, and other venues, including to family offices, philanthropy affinity groups, and in international locations. Because clients may be domestic or international, the Vice President will possess the acumen and technical knowledge required to work with donors around the world to help build RPA’s global presence.
The successful Vice President will thrive in RPA’s dynamic, and at times, fast-paced social enterprise environment. S/he will be a positive force in working with colleagues committed to promoting equity by enhancing the ability of their clients to serve the public good. With a strong understanding of business and investment strategies, coupled with an entrepreneurial spirit for cultivating new business, the Vice President will use her or his expertise to strengthen RPA’s global position.
A member of RPA’s management team, the Vice President will possess a high level of emotional intelligence, enabling her/him to lead through periods of complexity and ambiguity with effectiveness and creativity. S/he will seize opportunities to work with internal constituencies to solve complex problems or address emerging challenges. A demonstrated ability to work both and as part of a team and independently across a wide range of issues is essential. The Vice President will be committed to working in a constructive and creative manner to achieve RPA’s strategic and operating goals.
The position will be based in New York, and the responsibilities include:
+ Participate in the development of RPA’s global strategy and programs;
+ Develop, manage, and/or oversee global philanthropic collaboratives and regranting programs;
+ Design, lead, and/or manage consulting projects;
+ Develop, manage; and/or oversee research and publication initiatives;
+ In collaboration with other RPA teams, develop and implement strategies for outreach and client development;
+ Represent RPA externally as a thought leader, speaker, and writer;
+ Identify, pursue leads and prospects through external representation and networking;
+ Maintain expertise in global philanthropy on behalf of RPA and clients;
+ Participate in key cross-functional teams and initiatives for RPA;
+ Manage assigned project team members and consultants;
+ Oversee the timeliness and quality of RPA materials, including proposals, reports, minutes, and dockets;
+ Serve as a resource on global philanthropy for RPA;
+ Help RPA achieve its strategic and operating goals.
+ Lead New York-based advisory team, project team members, and consultants;
+ Coordinate the hiring and retention process for staff, including professional development plans.
How To Apply
+ Strong commitment to RPA’s values (https://www.rockpa.org/about/mission-values/), as well as to the organization’s mission;
+ A minimum of seven years of senior-level experience focused on grantmaking, consulting to major donors, and depth or experience in one of the following areas: impact investing, financial inclusion, or fintech;
+ Entrepreneurial and strategic thinker with knowledge or experience with market-based approach to making social or environmental change;
+ Strong collaborator, but independent thinker with strong judgment;
+ Experienced and effective communicator;
+ Ability to manage multiple projects, set priorities, meet deadlines, and accept new challenges;
+ Strong leader. Equally comfortable leading and participating in organization initiatives;
+ Sense of humor;
+ Excellent oral and written communication skills, as well as organizational ability;
+ BA and advanced degree or equivalent experience required.
Rockefeller Philanthropy Advisors, an equal opportunity employer, seeks a diverse pool of candidates and will offer a competitive salary and benefits package. Applications, including cover letters and résumés, and nominations should be sent to the attention of Paul Spivey at RPA-VP@PhillipsOppenheim.com.
WHO WE ARE – Creating Thoughtful Effective Philanthropy
Rockefeller Philanthropy Advisors (RPA) is a nonprofit organization that currently advises on and manages more than $200 million in annual giving by individuals, families, corporations, and major foundations. Continuing the Rockefeller family’s legacy of thoughtful, effective philanthropy, RPA remains at the forefront of philanthropic growth and innovation, with a diverse team led by experienced grantmakers with significant depth of knowledge across the spectrum of issue areas. Founded in 2002, RPA has grown into one of the world’s largest philanthropic service organizations and, as a whole, has facilitated more than $3 billion in grantmaking to nearly 70 countries. RPA also serves as a fiscal sponsor for more than 50 projects, providing governance, management and operational infrastructure to support their charitable purposes. For more information, please go to www.rockpa.org.
WHO WE SEEK
We seek an enthusiastic, reliable, self-starter who has passion for RPA’s mission and values, and a commitment to excellence. The ideal candidate is an experienced professional with an understanding and appreciation for the work of nonprofit organizations. This person must be flexible, proactive, committed to exceptional client service, command a strong attention to detail, and enjoy teamwork.
The Senior Researcher is responsible for developing research, conducting analysis and creating content that advances RPA’s thought leadership and public profile. With a primary focus on RPA’s leading thought leadership initiatives, the Senior Researcher works closely with the Director of Knowledge Development and collaborates with the Marketing and Communications team and other colleagues throughout the organization to create high profile, relevant services and publications. Primary responsibilities include:
+ Conducting research, interviews, and analysis;
+ Assisting in developing content, donor resources, and thought leadership publications;
+ Maintaining up-to-date knowledge of philanthropic trends and innovations;
+ Identifying and producing practical research that advances RPA’s role as a thought leader and contributes to the philanthropic sector;
+ Serving as an active thought partner to Director of Knowledge Development;
+ Providing research support for client activities, speaking engagements, and client proposals, across the organization’s lines of services and offices;
+ Contributing in substantive ways to RPA’s marketing and donor development strategies;
+ Supporting the planning, content, and delivery of relevant external convenings and media outputs.
+ BA and advanced degree or equivalent required;
+ A minimum of three years of demonstrated experience in a related role, preferably with deep knowledge of the philanthropic sector; international experience a plus;
+ Commitment to RPA’s values of integrity, trust, diversity, and quality;
+ Outstanding research, writing, and copy-editing skills;
+ Strong interpersonal skills, effective and clear communicator; experienced speaker;
+ Responsible, responsive, and deadline driven;
+ Strong organizational skills, attention to detail;
+ Proficiency in using social media and other channels for research and dissemination;
+ Ability to work independently and as part of a team, a highly collaborative spirit;
+ A quick learner and self-starter, adept and accustomed to working in a fast-paced environment;
+ Intellectually curious and creative;
+ Experience in and passion for philanthropy.
Rockefeller Philanthropy Advisors offers a competitive compensation and benefits package including health coverage, retirement benefits, paid vacation and holidays, tuition reimbursement, and access to professional development resources.
Applications, which will be reviewed as received, must include a cover letter describing your interest and qualifications, and your resume.
Rockefeller Philanthropy Advisors, an equal opportunity employer, seeks a diverse pool of candidates and will offer a competitive salary and benefits package. Applications, including cover letters and résumés, and nominations should be sent to the attention of Paul Spivey at
Wellspring Philanthropic Fund is a private grantmaking foundation dedicated to advancing the realization of human rights and social and economic justice for all people. Wellspring has offices in New York, NY, and Washington, DC. Wellspring’s work is rooted in respect for the dignity and worth of every human being and is informed by the following beliefs:
· Social institutions and structures should promote the full realization of human rights and human potential, and should be accountable to these ends.
· The rights of all people are advanced when the rights of the most marginalized and vulnerable peoples are protected.
· Social justice movements should employ means that are consistent with their ideals, and should give agency to the people whose interests they seek to advance.
· As responsible stewards, we must strive to maximize the impact of our charitable investments.
As a private foundation, Wellspring’s key functions are to conduct research and education tailored to our mission; manage a grantmaking portfolio of various programs, administer grants and monitoring grantee performance; and work to promote the effectiveness of programs that receive donor funding.
Wellspring Philanthropic Fund believes we are strengthened by the diversity of our staff, and welcomes such diversity including race, gender identity or expression, educational attainment, disability, veteran status, and personal experience with the criminal justice system. We welcome applications from people of all cultures, backgrounds, and experiences, and we strongly encourage people of color and persons with disabilities to apply.
Wellspring hires, promotes and retains employees based on their professional qualifications, demonstrated abilities and work performance, as well as on the degree to which these qualities are required in the employment positions made available by the Foundation’s service needs and business requirements. All personnel decisions, including but not limited to recruitment, hiring, compensation, assignment, training, promotion, discipline and discharge, are made without discrimination based on any protected characteristic as defined by law (e.g., race, color, religion, national origin, citizenship, ancestry, age, disability, gender identity or expression, sex, sexual orientation, marital or familial status, domestic partner status, veteran or military status, genetic predisposition or carrier status, and prior criminal convictions, as well as educational attainment.
Wellspring Philanthropic Fund seeks an intern to work with the Human Resources Team assisting with various tasks related to HR and recruitment functions. This paid internship is full-time (flexible), by mutual agreement, in our Times Square office in New York City. The internship is an ideal position to someone who wants to learn how to operate and thrive using HR methods in a busy organization of 70+ people.
· Assist the HR Team with administrative tasks such as; curating the Wellspring Jobs and Internship Outlook Accounts.
· Post all Wellspring Job Descriptions externally.
· Set up on-boarding itineraries and send out calendar invitations to new hires’ calendars.
· Organizing data to reflect recruitment efforts.
· Prepare Welcome Packets for new hires.
· Coordinate with Receptionist/Office Managers to schedule interviews with the President and Vice President.
· Assist with logistics to ensure smooth recruitment, and on-boarding processes.
· Perform other administrative and research duties, as requested.
· Assists with organizing/curating office events.
KNOWLEDGE AND SKILL REQUIREMENTS/QUALIFICATIONS
· Enrolled in Undergraduate Program, Bachelor’s Degree, or equivalent experience required.
· Familiarity with, and commitment to, human rights and social justice issues.
· One or two years of administrative experience in a professional office environment coordinating basic projects, performing complex scheduling, writing correspondence, recruitment, onboarding, and other aspects of HR.
· Excellent English language writing, synthesizing, editing, and proofreading skills.
· Exceptional judgment and ability to handle confidential information with complete discretion.
· Ability to multi-task, adapt, meet deadlines, and work both independently and collaboratively.
· Initiative, creative, resourcefulness, flexibility, and a sense of humor.
· Advanced knowledge of MS Outlook, Word, Excel, PowerPoint.
· Learn firsthand Human Resources processes specifically pertaining to recruitment and on-boarding functions of a grantmaking organization/philanthropy;
· Acquire a deeper understanding of the role philanthropic organizations play in promoting and advancing social justice and human rights;
· Develop and strengthen personal and professional skills in a workplace committed to the advancement of human rights.
· hourly position ($18/hour);
· flexible time schedule;
· weekly lunch series featuring Wellspring staff and expert outside speakers;
· opportunities to network with leading foundation staff through meetings, affinity group conferences, and events with other interns.
How To Apply
Applications should demonstrate strong research and writing talents, excellent communication skills and the ability to independently undertake various research, writing and administrative projects.
Send an e-mail to email@example.com with “Intern, HR Admin” in the subject line, and attach the following documents:
o a cover letter with a brief personal statement, and an outline of career goals and interests in human rights and social justice, as well as a note on your expected weekly availability in the Spring.
o a resume listing relevant courses, previous experience and special skills,
o one academic or professional reference; no personal references will be accepted, and
Complete applications must be received, not postmarked, by the deadline, November 9th, 2018.
The duration of this internship will be: December 10th, 2018 – May 25th, 2019 (flexible).
No phone calls, please.